Lets get an update in here before more happens/ changes!
Yesterday Matt and I went to visit Jaycie and they changed her to "AD LIB" feeds. This means she got to pick when she was hungry rather than being on a scheduled time. The critera? She had to eat every 3-4 hours. Finish 200cc's a shift AND gain weight. Well last night at 9pm (12 hours after starting the order) She lost almost an ounce. Today at 9am (24 hours after the order and 12 hours after the last weight check) She lost another ounce. They canceled the order. She is on scheduled feeds again. 60cc's every 3 hours.
The Dr informed me that when Jaycie goes home she will be on a monitor. (This will let us know her heart rate, Oxygen Saturation, and Resperations). I have mixed feelings about this. I like it because... thats all I know Jaycie with is a monitor and I constantly watch it to see her fluxuations. She does still desat and have bradycardia with her feeds. During the night and when she is in deep sleep she does have lower sats. But what I am NOT looking forward to is "lugging" around a monitor where ever my baby goes. Hearing the LOUD no volume control monitor for false beeps. Downloading it to the company monitoring it.
The Dr informed me of the monitor at about 11 this am. By 4pm the company called me and let me know they are delivering it to the NICU tomorrow. They also want me to be there to get the training lesson on it. They work fast!
Yesterday Matt and I got to give her a bath. (this was the first bath Matt was present for) he videoed it while I bathed her. We will post the video soon!
Tuesday, December 30, 2008
Monday, December 29, 2008
Sunday, December 28, 2008
37 Weeks
FULL TERM! She is full term now. (Anywhere from 37-40).
She weighs 6lbs 8oz.
Her food USE to be EBM (expressed breast milk) which is 20cals/ml and they added a human milk fortifier of 24 cals/ml. They switched it to EBM + Neosure formula (22cals/ml). She is gaining weight perfectly and she should stay on the added 22 cals until homecoming. (Which we still have no word on yet).
She weighs 6lbs 8oz.
Her food USE to be EBM (expressed breast milk) which is 20cals/ml and they added a human milk fortifier of 24 cals/ml. They switched it to EBM + Neosure formula (22cals/ml). She is gaining weight perfectly and she should stay on the added 22 cals until homecoming. (Which we still have no word on yet).
Friday, December 26, 2008
I hear an ECHO... In the Canyon...
Last night Jaycie nursed 1 feed, Bottled two feeds and use the NG tube for the other. We are quite proud of her! She was with a "HARD" nurse that will only feed her when SHE thinks is right so we are glad she was able to feed! :)
At 3am the nurse was with another baby and heard Jaycie making noises over there. She finished up with the other baby and didnt feel the need to call for help because Jaycie was being quiet. Well about 10 min later the nurse went over to Jaycie. She had her hand straight up in the air in a fist waving her arm around. In her hand you ask? Her NG tube she pulled out. The nurse said she looked quite proud to have it too! Her and the other nurse in the POD laughed about it! She got to keep her tube out until 9 this morning when we needed to use it. She was wide awake but had a episode while nursing and then another with the bottle, So TUBE fed she was!
Jaycie gets an ECHO today for her murmur and tachycardia. Im glad shes finally getting it since they've been talking about it .... FOR WEEKS and how they MIGHT do it. I hope it all comes out good!
We learned that Jaycie is in a "CURSED" bed spot. I guess the last few babies that had that spot in the unit had "FEEDING ISSUES" also. We joked about moving her but... the unit is FULL FULL FULL! I think they have babies stuffed everywhere! :) (Jaycies pod holds 3 beds and their are currently 6 babies in it, a set of twins, a set of triplets, and miss lonely Jaycie)
Jaycie is currently 6lbs 6oz, You can call her chubby... Im NOT denying it!
I hope everyone had a MERRY CHRISTMAS!
Kristy
ETA (Edited to Add): Jaycies ECHO came back normal! No Cardiac issues!
At 3am the nurse was with another baby and heard Jaycie making noises over there. She finished up with the other baby and didnt feel the need to call for help because Jaycie was being quiet. Well about 10 min later the nurse went over to Jaycie. She had her hand straight up in the air in a fist waving her arm around. In her hand you ask? Her NG tube she pulled out. The nurse said she looked quite proud to have it too! Her and the other nurse in the POD laughed about it! She got to keep her tube out until 9 this morning when we needed to use it. She was wide awake but had a episode while nursing and then another with the bottle, So TUBE fed she was!
Jaycie gets an ECHO today for her murmur and tachycardia. Im glad shes finally getting it since they've been talking about it .... FOR WEEKS and how they MIGHT do it. I hope it all comes out good!
We learned that Jaycie is in a "CURSED" bed spot. I guess the last few babies that had that spot in the unit had "FEEDING ISSUES" also. We joked about moving her but... the unit is FULL FULL FULL! I think they have babies stuffed everywhere! :) (Jaycies pod holds 3 beds and their are currently 6 babies in it, a set of twins, a set of triplets, and miss lonely Jaycie)
Jaycie is currently 6lbs 6oz, You can call her chubby... Im NOT denying it!
I hope everyone had a MERRY CHRISTMAS!
Kristy
ETA (Edited to Add): Jaycies ECHO came back normal! No Cardiac issues!
Wednesday, December 24, 2008
Merry Christmas
*Dont hate on the HUGE bow*... DADDY! Jaycie is doin well. She is 6lbs 3oz. She isnt feeding well yet but... It'll come... with time! We are very sad she isnt home with us for Christmas, BUT we are very THANKFUL that she is doing as well as she is! We are truely blessed to have 4 great kids!
Monday, December 22, 2008
5 Weeks Old!
*5lbs 15oz. Shes BOUND to hit the 6lbs mark tonight!
*She is still having "Punky" episodes while eating. They want to do a swallow study towards the end of this week.
* She had her Crit and Retic count done (blood test for anemia) She still has some low levels so they increased her iron. They will recheck it in about a week to make sure its on the rise! if not they may do a blood transfusion.
* She is eating 57cc's ALMOST 2oz (which is 60cc's).
Please keep praying she comes home soon.
*She is still having "Punky" episodes while eating. They want to do a swallow study towards the end of this week.
* She had her Crit and Retic count done (blood test for anemia) She still has some low levels so they increased her iron. They will recheck it in about a week to make sure its on the rise! if not they may do a blood transfusion.
* She is eating 57cc's ALMOST 2oz (which is 60cc's).
Please keep praying she comes home soon.
Sunday, December 21, 2008
36 Weeks!!
5lbs 14oz
She had her blood tested to see how her anemia is. Its a little low she they are raising the iron dose. She is now at 55cc's for her feeds. The past 2 nights she has eaten all her food from a bottle. The day is a different story tho, Sometimes none, Sometimes half, Sometimes all.
Her Desating is coming far and in between now.
I dont think I'll be getting her home for X-mas... BUT I could always hope for my Christmas Miracle. Im hoping by the new year she'll be at home where she belongs!
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